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In 2026, I’ll be racing as often as my body will allow — and every race is in support of CURE GABA A, an organization that has been instrumental in supporting families like ours as we search for answers for our little warrior.
Raina’s epilepsy is the result of a variant in the GABRB3 gene. When we received the diagnosis, we were told it was extremely rare and that our best bet was to find other families through the internet and social media. That search helped, but the day-to-day challenges often still felt uniquely ours. For years, we navigated it largely on our own — trialling new approaches, questioning medications, advocating at every turn.
In the Fall of 2023, my wife Julia found CURE GABA A. What followed has been the most hopeful stretch of Raina’s journey yet. In the 16 months since joining this community, we’ve made more progress than in all the years prior — funding research into Raina’s specific gene variant, helping facilitate the production of an iPSC cell line, and constantly bringing together the brightest minds in this niche area of neurology.
Their work doesn’t just support families like ours in general — it very, very directly benefits Raina. Every dollar raised accelerates research that could change her future. Every ounce of effort I put into fundraising from here forward will be for CURE GABA A. We are forever grateful.
Every donation funds research into GABRB3 gene variants and gives families like ours real hope. Racing is how I raise awareness — donating is how you join the team.
brianclafleur-psdcb 